Subtitles for Lunch-N-Net | Ep 11 (S2): "The One About Autism and Developmental Delays"

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i welcome to another episode of
luncheonette with lori dat
that is made
and i'm really excited to bring
you this episode aline
developmental delays
and children with autism we've
got it expert in the field and
that sell ten gilliardi
and he has with the u_s_ at
center autism and related
but first of all at got a few
announcement i wanted to go over
with you
posted on our key p i've florida
website we have the recent video
from the live event that we did
on june twelfth it is secretary
wilkinson he's talking to us
about the foster care redesign
legislation and implementation
so for those of you who weren't
able to join a flight that day i
hope you're gonna be able to
check this out there some great
information and wonderful news
about the child welfare system
so take a look at that
second we had the wonderful
pleasure of going to the florida
state foster adoptive parents
say ciation conference in
orlando what a great time and
record number of foster parents
were able to attend
we are going to be posting very
soon on our website
the videos at the workshops that
we were able to take their so
keep your eye out on the website
also on our page the page and
we're gonna be posting when when
we're able to put those up so
uh... we hope you can enjoy that
and get a lot of great
information from some wonderful
speakers that we're able to
attend the workshop
and last but not least wonderful
news that we are so thrilled to
share with you governor rick
scott signed the bill extending
foster-care age twenty one and
this is something that we've
been working on for years here
uh... the extension of care
program which begins january
first two thousand and fourteen
is called my future my choice
because the you can choose
was whether or not they want to
as long as they meet
requirements such as being in
school or working they can
decide on a living environment
while receiving the emotional
financial supports to help them
succeed road to independents and
aftercare are still available
the website inflow chart with
more information is posted right
here in the episode resources to
take a look at that
and uh... we're gonna be
bringing you more information on
that as it becomes available
now without further ado co
i'd introduce to you shall ten
thank you for joining us up and
thank you for having me
your welcome thank you for
so first of all i what i wanted
to share with you is
we had a lot of requested and
let me just eighty viewers out
thank you for sending in your
requests and that's exactly why
we're here
to be able to bring to you
speakers and presenters have
been answer the questions that
you have related to the children
in your home
and i know a lot of people who
have request about
on developmental delays and and
and sat on as i explained to
shout then you know i sponsored
parents we don't have the
benefit allot of times at the
history of the children coming
into the home
so could you talk to our viewers
a little bit about may be how
they could recognize
developmental delays and maybe
distinguish what might be the
difference between
tron are related delays or you
know maybe things just because
of their past and may be true
potential for autism
there's a variety of different
type of developmental delays
some of those delays can be
child isn't either
expressive expressing themselves
like they typically would
in a normal situation
they could also be
motor delays adaptive for social
types of of delays or they could
be a part of a cluster like you
would see consistent with autism
general look promising really
kinda give
young kids
uh... a week
for two weeks time to really
kinda acclimate too
new environments com like a
foster care home before
conclusions pete ron about
their behaviors
about their social skills
on really just kind of giving a
un opportunity for the child to
learn the new environment as
well as the caregivers
as well as for the caregivers
to learn the child
those out the blaze can
persist again that's just a
window of time but generally a
week to two weeks is probably
ample time two can you give that
child an opportunity to
to uh...
become accustomed to that
that new home environment
with autism
d concerns could be very very
different autism is a
complex neurological
disorder that impacts the
child's ability to want
also socially interacting relate
with the outside world
there's also a on paper for his
with regards to repetitive
so you have this cluster of of
characteristics that are
are consistent with out with
this particular a disability
and dom
the intensity level could really
vary from shop to counsel again
it's it's very difficult
tutti standout oftentimes
you won't get that information
initially as you said oftentimes
kids abroad
onto foster-care homes there's
um... sometimes it may be across
a crisis situation
he oftentimes don't have access
to all of the information
uh... insulate
it begins to
take a a bit of time in order
the child to learn environments
wants with them
the foster care to learn
exactly what the child is
presenting with and what might
areas of of concern that need to
uh... addressed either
and evaluation or some other
type of follow up with the
medical profession
well that brings a question so
if i had a child come to my home
and i'd believe that there are
some developmental delays first
of all is there a resource that
i could go to take that would
maybe get our brains i think age
with the developmental milestone
so let's say i get an end
uh... uh...
twelve month old child
and maybe they're doing some
things that i think maybe on
target but something's delayed
is there some place that i
should go to look and say ok
this isn't within the normal
range expecially considering
your background but then now
once we find outside of a uh...
and has certainly age
maybe we need to how further
well one and there's a lot of
uh... checklists and
questionnaires i can really
foster parents with
uh... for themselves
as well as a an objective way to
kinda tell
what types of milestones the
child has already achieved as
well as with the expectation is
estate which they are
there the next level of
those types of checklists
include in ages in stages
questionnaire which is
is readily available he there's
versions online
because of the resources in the
community that also use this as
a standard screening tool
parents and caregivers of foster
um... gauge where a child might
um... another resource on
generally across the state
um... there is some type of
developmental screening entity
uh... in
are various towns across the
urinals hillsborough county
a out monthly developmental
screening that occurs on a
monthly basis and it will tapes
uh... across various locations
across the county in which
child could be
evaluated for concerns around
they could be valuating screen
communication or social skills
deficits all those things that
might point to a specific
type of developmental disability
and so those resources are
readily available in the
four foster parents and other
uh... caregivers and providers
in the community
and then after that there's also
an process in place where
they can get it
access to
more formal diagnostic testing
uh... that would uh...
further clarify exactly where
the concerns of what the
diagnosis might be
parts so you would recommend
early on if there's a concern to
take them to a screening and
then at the screening maybe
the required some kind saturns
then maybe take the next step to
up more formal evaluation of the
child's yes
do you have some tips a lot of
times i think we as foster
parents are always looking for
ways that we can help the child
are there some
some on resources or even some
tipster techniques that you can
tell foster parents these are
some of the things that you can
do to help that child who
actually has developmental
for a lot of keys with different
types of element of disabilities
just building in expectations
a lot of kids perform very very
both typical developing kids as
well as those kids with
developmental concerns
when they have
um... the ability to predict
what's going to have been in the
again going back specific to
you know won in eighty eight
children are being
now diagnosed with with the
heart of somewhere around one in
eighty eight yes in order to the
boys being
nearly four times more likely to
be in pakistan girls
one of the things that we
uh... work with family stuff
within our program we work on
his is building in that
consistency so that
the child
can expect
and know exactly what's gonna
happen first what's gonna happen
second because oftentimes uh...
the the disability impacts their
ability to really kind of
what's gonna happen in the name
cause is
that stress
that triggers paid
behaviors behavioral axel and
dress shirt maker raha sent
frightened so that carries
for typically developing cues
that might be in transition
through the foster care system
went through some other type of
of of of
nontraditional type of home
uh... so the consistency is
something that that that foster
parents can definitely do to
speak about
what works
so greek existence it would be
like preteens in your day
weed with that included like
may be consequences
what consistency and in planning
things out meals are all that
sort of thing
uh... so like an example would
be the morning routine
if there's an expectation for
doctors appointments and things
of that nature that the child
learn that
we need to get up we need to
brush our teeth there's a set of
events that need to happen
by a set time
and sometimes uh... specifically
with kids of autism
on the expectation is unclear in
their mind even though
the foster care payment given
the game the instruction
multiple times
child may not have the ability
to process that will hold onto
that communication
and so it might be bob necessary
to create a vision for
of events and visually
is uh... some orch is a strong
the way to communicate
um... with without kids on the
autism spectrum and so
oftentimes we encourage
families that we will quit work
to uh...
visually exactly what the
expectation is in support those
um... visually as well as purple
as on
some of the verbal instructions
just are not effective in terms
uh... to keep responding like the
to keep responding like the
foster care parents
or other care givers michael
and i can see where that
could create some anxiety
because the parent may think
that the child is
intentionally not listen could
considered havior often when
considered behavior often when
it's really a processing
a lot of work it's also
uh... one of the home are
characteristics of autism is the
lack of eye contact and so this
could be problematic in a foster
home as well as is um...
denied contactus is one of those
indicators that
you're listening to me and i'm
listening to you
oftentimes just partisan
on this very uncomfortable for
them to maintain that contacted
that i contact
and down
but they're very much process
and what's been said to them
they still may be put to the
following carryout
the instructions that they've
given so
uh... back to my initial comment
about just kind of learning
the child as a learning process
that has to happen specifically
kids autism
with kids with autism
so can you explain to us a
little bit about this spectrum
because we hear this term
and ait don't exactly understand
what it means other then
i think it means which is
dairies eight uh...
people in various stages i guess
is how i would look at it
with autism
can you explain test you know
what that means and how it would
affect us in
what we think about the the
autism spectrum there's uh...
multiple diagnosis tested under
the umbrella of sorts of of
uh... of the spectrum and so
underneath the umbrella of
autism spectrum disorders
is uh... rates disorder
childhood disintegrated disorder
has produced this order
and pervasive developmental
not otherwise specified
so all of these diagnosis under
the umbrella and that they share
a commonality and that
there's this typical pattern
of development
up until about twenty four
months of age eighteen to twenty
four months of age
and then for some unknown reason
there is a star decline
handles developmental skills
so child that was once talking
socially connected to parents
an unknown reason we don't know
exactly what the cost of autism
but there a stark decline and
but there is a stark decline and
the communication skills are
very limited or
so one day there
your they're acting like at
technical two-year-old and then
uh... in a quick you're saying
estar decline quickly they might
revert to may not talking and
while so it could be
dot acute in terms of of of the
onset of the guise of of of the
characteristics and so
again we don't know exactly what
causes it
but uh...
there's just this phase very
assisted start
decline of of developmental
skills that process
across the life and so
was a child is diagnosed with
autism their impacted on some
across their wife stance of
might look very different
but the signs are still there
when we talk about the the
spectrum of diagnosis
uh... we also have to talk about
intensity level intensity in
the characteristics are present
you might have a child who
uh... is able to manage their
behaviors might have some
communication in place some
functional skills
on military on the other hand
you might have a child who's
very very
traumatized by social situations
uh... may not have any
communication skills at all
and may have a set of
challenging behaviors that are
fair very intense in those
behaviors could be
self interest in nature where
you have a child who
thanks there head
except the skin or some other
part of the body on some type of
self injures behavior as a
response to
what you and i might
might deem it as a as a normal
selection social environment
uh... their responses of a
atypical to normal
on environmental stimuli account
might have an adversity intense
adverse response to
the phone ringing for example
because it's such
the way that their minds process
input is so different from the
way that you and i would
it causes them that much stress
that they're having
you know they difficult time to
process that good responses very
rob that's interesting
so what is that there is that
uh... there and starts there
soul bats and did you know when
you were talking about this time
so that's kind of an autism what
about some of these other
disorders weight with the
characteristics of the other
disorders be a little bit
different maybe a little less
intense are more intense in
different areas
autism has some commonality with
some of the types of of of
again in order for the diagnosis
to be given there has to be that
area of concern
in social skills
in communication as well as
repetitive behaviors
uh... with other types of of
of conditions there may not be
the intensity
of challenge of behaviors
but one of the other skill sets
or skill specific areas
it just depends on
point on that particular
diagnosis that would be compared
a lot of our kids with autism
have coexisting eighty h p for
example and so you might have
accused a very hyper
connecting really
come because of the most
distressing alive there
inability to
to uh... to to pay attention
himself regulation self-regulate
most types of things though
those things can also coexist
with autism so it's just a very
complex comp
you can also have coexisting
health conditions
that might exacerbate
one of those signs and symptoms
of autism
like diabetes or
asthma or some other type of of
of uh... chronic health
condition and so
it makes the bag miss
this uh... that much more
complex right
would you say if there are
and ideal time frame to
have them evaluated her do you
know like acted like a thanking
the perfect time to catch it you
noticed just to find out yast i
think there's any issue
get the evaluation done and then
start ana on a plan
there's still a lot of unknowns
around the diagnosis of autism
silly in a lot of research
they're being conducted around
because around treatments and
all those things
one of the things we do know is
early intervention
significantly improves outcome
so we talk about outcomes were
talking about the possibility of
moving independent
the possibility of
language development the
possibility of holding a job in
those types of things of
acquisition of self-care
unskilled so
that earlier that
uh... child can get connected
appropriate uh... screening
diagnostics as well as
it's nificantly impacts
the outcomes on the back and so
i would say as soon as as
concerns are raised
follow up with your pediatrician
uh... if you're not getting the
answers that you're looking for
with your pediatrician explored
the option of a of a second
again there's a lot of resources
here at the university
if you're having concerns
iowa when i speak to my mom's
house and you have uh...
maternal instinct
that tells you something
isn't quite right with your
child when that speaks to you
listen to that and so
going that one step further
around getting a child diagnosed
by uh...
by the train tied by a
professional qualified to
to look at characteristics and
consistent with autism
on these very very important and
early you do that
continue significantly improve
on the back and so individual of
sunday's you would typically cv
uh... sons assumptions about
eighteen to twenty
four months of age
so within that window as close
as possible
for the time you begin to see
uh... some of the
characteristics is very
to follow up either with uh...
development pediatrician
your speech pathologist any of
these folks would be qualified
to give you some additional
information as well as provide
information around diagnostics
and uh... i can certainly
provides you with some other
uh... community-based resources
that family side
can access to get diagnostics
done as well as uh...
developmental screening
now would be great if we can
post those resources right here
on the show and then our viewers
will be able to access that
would be awesome um... another
question that i had for you
relates to sort of an
expectation at the time frame
um... so if they fight noticed
some challenges and i went to my
pediatrician normally how long
is the process the evaluation
and then at diagnosis and then
you know beginning i guess just
beginning on the journey of
putting together a plan to help
this child
trees are so different
it really does very
even some of the most trained
in the field of developmental
sometimes are hesitant to give a
rather it's artisanal rather it
some other type of agnes unless
it's clear and sometimes it
might be warranted
to wait
three to six months
given a formal diagnosis on
sometimes you want to wait for
some of those other development
expectations to be to be
expected and then
uh... the diagnosis becomes much
more clear
in terms of turnaround time
if a foster-care parent
getting to see a pediatrician in
a timely manner
i bleed
not longer than a month
to get in
to a formal evaluation
uh... for screening
and a follow up being initiated
some of our uh...
state-mandated programs like
uh... the u_s_s_ early steps
program they have a forty five
day window so say you had a
child who was
uh... two years old
uh... there was a concern and
developmental concern
from the time that
the concern is raised in
and the foster care can actually
makes that phone call
the the the clock starts to take
some of the forty five
day turnaround window for that
to be value weighted and or have
resources p
in place so maybe that's a
speech and language evaluation
maybe that's a anyhow functional
beaver assessment with the
behavior analyst of some sort
so some resource has to be
uh... implemented a recommended
within a
forty five days
window and that's why i say
about thirty to forty five days
is really kind of a realistic
time frame
to get into
uh... some type of diagnostic
situation in them
recommendations vp set forth
services uh... families be
connected services
okay expected to know because
that would be a concern you know
having to wait too long
you know i'm not sure what we
should be doing in the weight
invokes a lot of addition
complications arose myself
those concerns but
thirty to forty five days i
think it's itself
is a realistic
do you have any other
information that you'd like to
you know make our viewers aware
of related to you know dealing
with the children with autism
ruled that the system of care
like for food for before your
viewers to really kind of get a
an understanding for the system
of care for developmental
across the state goes
that there is a uh... early
steps program
um... across the state and so
if the child is under the age of
and you're having developmental
concerns for that child
they are entitled to
a developmental evaluation
and follow-up
and so
as long as they're under three
years old they can access them
that particular serve so there's
a concern for
speech and language
self-help skills
any of those types of
developmental concerns
they can get a formal
evaluation and follow so with
i've as the foster parent
contact early steps myself okay
great and that information is on
internet i can just yes uh...
locally here
the number is eight one three
nine seven four
zero six zero
across the state again if you
go on the internet lookup
early steps
um... earlier program
i'll call you local a family
resource network they should be
a bit of connecting
with your local released its
and that would be the first step
kids at a under the age of three
and they think that they they'll
take that except that request
from the parents and stop it
doesn't need to come from
and agency or anybody else there
may be concerned with who can
give consent but if their
calendars and foster care and
there's a case manager and that
sort of thing
those types of cancellations can
be worked through that won't get
the ability for that child to be
evaluated uh... within that
forty five day time window
also sheer um... at u_s_ of
local in hillsborough county
we also have a uh... diagnostic
clinic as well for kids that
might already be in the school
school placement already it's
um... icy clinic
um... and got to get connected
with that clinic your u_s_f_ the
number is
nine seven four
zero nine
six eight
amortize disciplinarian and
that dom
will give a family
uh... the autism diagnosis
for the diagnosis of some other
type of developmental disability
and that one of the resources i
spoke about early the early
childhood counsel
also provides the monthly
developmental screening
is that a statewide agency com
their local agency local
economic there is a screening
across the state it might be
attached to
maybe your head start program or
your other childcare resource
look for some type of
of uh... screening entity in
your local area if you have in
some of those initial concerns
and uh...
you know just uh...
just be resourceful
thursday there's
the resources our comprehensive
but there are some things i
can't help
cunha set on some of our foster
families in the right direction
and uh...
ensure that our kids in the in
the foster care system get what
they need and get the
appropriate diagnosis i think
it's warm
well thank you for this
information we're gonna bergen
at poster com your information
as well because
you've got some wonderful
training resources with card so
we're gonna post back here as
well and gone
that we are viewers can access
this will sell ten
you've been a wonderful source
of information and i think our
viewers are going to get a lot
from this and i appreciate it
and your time coming over here
to do this interview taking so
he learns
foster parents i hope that you
have just been able to get a lot
of information and were able to
reach out and get your children
the uh... the screenings and the
help on that they might need
with their developmental delays
and i thank you for joining us
for another episode about
luncheonette with floridians
i hate would like to encourage
you as always to send us your
requests your questions your
suggestions for topics you can
either send them to us on at
heart you know address
or you can also go to that face
book page and poster request
junior on suggestions your
comments we love to hear from
you and again that's why we're
here is to bring you this
valuable information that helps
you every day to take care of
the children in care we thank
you for what you do
thanks again for joining us
today thank you again sell ten
for this information
and we'll see you next time

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On Episode 11 of Lunch-N-Net Season 2, Shelton Gilyard, from the Center of Autism and Related Disabilities, joins Lora to speak about children with Autism and other developmental delays. Insights into the disorders and tips on how to help children diagnosed with them are all discussed in this episode.

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